Insight Endometriosis is a registered Charitable Trust which provides community support, quality information, and raises awareness to reduce long diagnostic delays.
Manager/Educator Annette Evans comments “Endometriosis is a significant and common condition with wide quality-of-life impacts extending to fertility, relationships, work and study. It is particularly difficult for teens and younger women, impacting studies and life goals such as OE experiences. Our vision is that ‘Endometriosis is widely understood and recognised; those affected are supported and empowered’”.
Newly appointed Fundraising Co-ordinator Fiona Charlton is focused on creating new Events that raise awareness by providing opportunities for the Endometriosis community and the general public to get together in fun, relaxed environments. “Raising funds will enable us to extend our free services, to a wider community. Endometriosis is still misunderstood, with period pain either not discussed or normalised. Women still suffer in silence, instead of seeing specialists and being diagnosed.”
Most women are diagnosed in their 30s, yet commonly experience symptoms throughout teen years. It is critical to reduce significant diagnostic delays, to improve outcomes and preserve fertility. You can join our major Awareness Event, the annual Purple Walk in Hamilton during the second week in March. Watch out for new Events coming soon. Our EndoWhat?! programme – “What everyone needs to know about Endometriosis’) is available free of charge to community organisations.
The most common Endometriosis Symptoms are:
- Pain with periods (dysmenorrhoea)
- Pain during intercourse (dyspareunia)
- Fertility problems
- Problems with the bowel such as painful bowel movements, a bloated abdomen, constipation, or diarroea (often cyclical)
- Constant tiredness
- Depression, mood disturbances, PMS
- Pain at other times (eg ovulation)
- Pain in other places such as lower back
- Painful urination
- Abnormal menstrual bleeding such as premenstrual spotting or heavy periods
- Immune system issues
NB: Symptoms can be similar to Irritable Bowel Syndrome (IBS) or Pelvic Inflammatory Disease (PID), but are often cyclical.If period pain affects your lifestyle, seek help from a gynaecologist specialising in endometriosis.
Support groups operate in Hamilton, Cambridge, Morrinsville/Te Aroha/Paeroa; and we are keen to set up other groups wherever there is interest. These groups bring women together to connect, share experiences, and support each other.
Our education programmes are evidence-based to empower informed decisions. Night classes and weekend seminars are held, as well as monthly information nights.
Our website is full of fact sheets and personal stories, while our Facebook page connects our community and advises of upcoming events. We are currently upgrading our website, so it will be exciting to unveil it in the next month – for example, multi-lingual pamphlets will be available.
To find out more about endometriosis and our community work:
- Visit http://www.insightendometriosis.org.nz
- Like our Facebook page: http://www.facebook.com/InsightEndometriosis
- Join our mailing list: email@example.com
As a Registered Charity we rely on community generosity through volunteerism, donations, sponsorships and grants. To find out about joining our wonderful group of volunteers or setting up a support group in your area, please contact our Volunteer Co-ordinator Deborah Dodunski. We have plenty of volunteer opportunities such as poster deliveries, admin work and fundraising Events. We would love to hear from you to discuss these opportunities.
You can support our work with a monthly donation, and we welcome event sponsorship and regular contributions from businesses.
With YOUR support we can expand our Community programmes to improve outcomes for significant numbers of local women.
- To find out about education, community support and donations, contact our Manager/Educator, Annette: firstname.lastname@example.org or phone: 07 8555 123
- For Volunteering opportunities: Deborah Dodunski email@example.com
- Fundraising and sponsorship : Fiona Charlton firstname.lastname@example.org
We look forward to hearing from you.